Peer Support KanWork 1/2020

Seri Kembangan, 23 Ogos 2020. Persatuan Kanser KanWork telah mengadakan program Peer Support 1 secara online. Program ini diadakan untuk pesakit, survivor serta penjaga (carer) bagi berkongsi pengalaman menghadapi cabaran kanser serta mendapat sokongan emosi dan psikologi. Sesi yang dikendalikan oleh Dr. Asmah Ismail, Pensyarah Bimbingan & Kaunseling, Universiti Putra Malaysia. Terima kasih kepada semua yang menjayakannya.

PEER SUPPORT KanWork 2/2020

KanWork Stay @ Home: CERITA KAMI - Siri 77a

Siri 77a: LOCKDOWN @DENMARK (Part 2)

Prior to lockdown I had almost daily contact with colleagues. Suddenly ordered to work from home and almost no contact, later weekly online group chats and infrequent coffee-in-the-garden chats, later on really minimal communication and sharing.

Working from home (part-time teacher at university, main area University Pedagogy):

• Observing online teaching and group facilitation and providing feedback.

• Later producing online lectures about facilitation issues.

• In the end, sitting idle as all my supervisees were too busy with organizing online activities and family tasks.

I am involved in pedagogical development within engineering education (a European project). This includes a two-day online meeting!

Sometimes I was unclear about which day of week.

I walked approximately 2 x 2 km through forest to collect daily newspaper. 

News via radio & internet frequently; from frantic to indifferent.

Terminated:

• Choir practice (tried online rehearsal but didn’t work).

• Qi Gong practice (often postponing and forgetting).

• Relaxation exercises (but continued online successfully, sustaining our sense of community despite distancing).

I initiated construction of routines inspired by submarine commander and astronaut. Routines later dwindled. Being my own commander, I could sense how my drive, inspiration, motivation slowly exhausting. However, I insisted holding on to:

• Rising when waking and daytime power napping.

• Seeking healthy foods and supplements.

• Cooking own food.

• Checking appearance of spring flowers.

• Observing arrival of earliest migrant birds.

I experienced unusual problems with dry skin, disturbed sleep and tightening muscles.

Delayed:

• 60 m 2 vegetable gardens (eg. leeks, beetroot) partly due to cold spring weather, partly to my feeling of disempowerment.

• Flowerpots and troughs. Some plants were unavailable.

I have 2 sheep in 3000 m 2 grazing, 2 cats & 8 hens. Surrounded by:

• 0.5 km 2 farmland (barley, wheat, grass-seeds)

• 5 km 2 forest (mainly spruce, some oak, pine, etc.) With pheasants, deer, fox, crow, raven, etc.

Fast forward, life in Denmark is almost “normal” with low infection rate.

August 27, 2020

Claus Monrad Spliid

KanWork Supporter

KanWork Stay @ Home: CERITA KAMI - Siri 76b

Siri 76b: LOCKDOWN @DENMARK (Bahagian 1)

Bagaimana saya melalui peringkat awal (Mac-Mei) Covid-19? Setelah tiga minggu ‘lockdown’, saya sedari saya berada di tengah-tengah proses bersedih; menyedari bagaimana tingkahlaku saya dan mimpi saya telah mendedahkan keadaan separa sedar fikiran dan perasaan saya. Minggu demi minggu saya melalui tahap dari penafian ke kemurungan kepada kemarahan, kemudian penerimaan, kemudian sekali lagi kemurungan dan penawaran. Kesedihan tidak mempunyai penamat yang sebenar, hanya fasa dan keadaan yang berbeza, satu perasaan kekurangan kuasa yang tidak dapat dilihat dan dinyata seperti keadaan gigi saya yang pecah.

Nenek saya meninggal dunia akibat Spanish Flu pada Disember 1918. Beliau berusia 36 tahun ketika itu. Tujuh orang anaknya juga sakit tetapi terselamat. Pada Januari 2020 apabila kita dimaklumkan tentang wabak Wuhan, saya mengambil itu sebagai amaran. Namun, saya fikirkan ini hanya satu lagi selesema. Sistem kesihatan kami telah bertambah baik sepanjang 102 tahun ini. Walau bagaimanapun, pihak berkuasa kesihatan menyatakan kebimbangan yang serius, ini bukan selesema biasa.

Saya membeli ‘hand-disinfectant’ dua minggu sebelum ‘lockdown’ pada Mac 12. Selepas itu saya membeli-belah dengan berhati-hati di pasaraya yang lengang.

Saya juga telah membatalkan dua majlis makan malam yang dijadualkan untuk saudara-mara dan rakan; melawat makcik saya berumur 81 tahun dan saudara-mara rapat secara penjarakan sosial.

Dalam keadaan yang tidak menentu dan khuatir, saya cuba mengikuti berita setiap jam pada waktu itu, demi mengawal ketagihan saya untuk emel dan talian secara pasif sehingga enam minggu ‘lockdown’ apabila saya mendapati bapa saudara saya yang berumur 90 tahun mati dan reput (mungkin menderita kegagalan jantung selepas panggilan telefon terakhir (tiada jangkitan Covid-19). Adakah ia berlaku kepada saya? Seperti beliau, saya juga hidup bersendirian dengan tiada siapa untuk menjenguk saya setiap hari. Seperti beliau juga, saya tidak membuat panggilan bantuan. Tidak seperti beliau, saya tidak mempunyai isu kesihatan yang diketahui. Apakah saya boleh membantu beliau dengan cara yang lebih baik?

Saya mendengar berita media secara acuh tidak acuh. Selain itu, saya jauhkan diri daripada beberapa acara sosial. Dalam kekurangan kuasa... berasa khuatir......

27 Ogos 2020

Claus Monrad Spliid

Penyokong KanWork

KanWork Stay @ Home: CERITA KAMI - Siri 76a

Siri 76a: LOCKDOWN @DENMARK (PART 1)

How did I fare in the early days (March-May) of Covid-19? Three weeks into lockdown I realized I was in the midst of Grieving Process; recognizing how my behaviour and my dreams revealed my unconscious state of mind and heart. Week by week I moved from denial into depression into anger, later acceptance, then again depression and bargaining. Grieving has no real end, just different phases and faces, an inherited sense of disempowerment became discernible and manifest in a broken tooth.

My grandmother died from the Spanish Flu in December 1918. She was 36 years old. Her seven children were also sick but survived her. In January 2020 I took that as a warning when we learned about the Wuhan outbreak. However, I thought this is just another flu. Our health system has improved enormously in those 102 years. However, the health authorities expressed serious concern: this is not an ordinary flu.

I shopped hand-disinfectant two weeks before lockdown March 12. Later I was shopping cautiously in almost deserted supermarkets.

I cancelled two scheduled dinners for relatives and friends; had visits at a distance with my 81-year-old aunt and with close relatives.

Uncertain and apprehensive, frantically following the news by the hour, seeking to control my addiction to mail and online passivity until six weeks into lockdown when I found my uncle of 90 years dead and decomposing (presumably suffering heart failure hours after last telephone contact (no Covid-19 infection). Could it happen to me? Like him, I also live alone with no one to check up on me daily. Like him, I don’t call for help. Unlike him, I have no known health issues. Could I have helped him better?

Media news I subsequently treated with indifference. Moreover, I withdrew from some social settings. Disempowerment... apprehensive……

August 27, 2020

Claus Monrad Spliid

KanWork Supporter

KanWork Stay @ Home: CERITA KAMI - Siri 75

Siri 75: YouTube KanWork

Salah satu peranan KanWork ialah untuk menyampai maklumat dan memberi pendidikan melalui pelbagai program yang dijalankan.

Dalam tempoh Perintah Kawalan Pergerakan ini, KanWork tidak dapat melaksanakan program secara bersemuka seperti kebiasaannya. Oleh yang demikian, KanWork telah menyediakan ‘channel’ KanWork di laman YouTube untuk perkongsian maklumat. Sehingga kini, sebanyak enam video pelbagai tajuk telah dimuatnaik, Insyaallah yang lain akan menyusul. ‘Stay tune!’

Pautan video seperti di bawah. Jom kita tonton!

1. Lets Talk Cancer (Dr. Mastura Md Yusof)

https://youtu.be/FDcn60wPwyo

Maklumat asas kanser, kanser berulang dan simptom

2. Nikmat Sihat & Cabarannya (Ustaz Abdul Jamir Md Saad/Jamir Kodiang)

Bahagian 1 : https://youtu.be/7BI847eS7uU

Bahagian 2 : https://youtu.be/0PHGCduPoXA

Pengisian tentang nikmat sihat serta hikmah di sebalik ujian Allah

3. Cancer Recurrence (Dr. Matin Melor)

https://youtu.be/q0qxkwRUwLw

Maklumat kanser secara umum, kanser yang berulang, faktor penyebab, rawatan, serta langkah pencegahan

4. Maklumat Asas Kanser (Dr. Azura Rozila Ahmad)

https://youtu.be/TM2g85Su8f8

Jenis kanser, simptom kanser, serta rawatan kanser

5. Penjagaan Paliatif Pesakit Kanser

(PCN Mastura Mohd Rasyid, Hospis Malaysia)

Bahagian 1 : https://youtu.be/zbrTJF-8eaY

Bahagian 2 : https://youtu.be/ecPLAENsBfQ

Maklumat bagaimana untuk menjaga pesakit kanser (paliatif)

6) Berkebun

(En. Abdul Karim Mansor, Fakulti Rekabentuk & Senibina Universiti Putra Malaysia)

https://youtu.be/FAPN_5VQVak

Pelajari teknik berkebun serta menanam pokok hiasan dan herba

Jangan lupa SUBSCRIBE & SHARE!

Semoga perkongsian dapat memberi manfaat kepada semua!

KUNJUNGAN HORMAT KanWork KE BAHAGIAN PENDIDIKAN KESIHATAN, KEMENTERIAN KESIHATAN MALAYSIA

Putrajaya, 28 Ogos 2020. Persatuan Kanser KanWork telah mengadakan kunjungan hormat ke Bahagian Pendidikan Kesihatan, Kementerian Kesihatan Malaysia (KKM). Kunjungan hormat ini adalah untuk menambahbaik peranan KanWork serta perbincangan mengenai program promosi kesihatan. Terima kasih KKM dan semua yang hadir bersama.